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Showing posts with label Fibromyalgia. Show all posts
Showing posts with label Fibromyalgia. Show all posts

Monday, September 6, 2010

Autistic Teen Finds Inner Voice

I found this on Face book today. I am so happy for this young girl and her family. We have our Noah and he is extremely autistic. He has most all the same symptoms as this young girl. We have often said that we believe much of Noah's melt downs are the result of him not being able to communicate with us. He seemed a little better once he was able to show us what he wants. But now that isn't working either. His reactions to what goes on around him are unacceptable in society. His fits that a normal child would have end up hurting him and others around him. He lashes out with head banging and hitting, if he can't hit you, he hits himself. In fact most of his tirades are against himself. In the course of one of these fits, he lashes out at anyone close. So if it is in the car, his brothers and baby sister are the victims. If you are trying to calm him so that he doesn't hurt himself or others, then you are the victim. Today, my arms are covered with scratches and bruises where he held my harms and pinched me with his fingernails. Of course, his ribs have to hurt. He beats himself in the ribs. They must be so tender to the touch. I don't think he feels the pain the same way we do.

This young girl, Carly, has put into words what we always want to know. Why do you do this? Sensory overload is basically the reason. Everything effects them sensory wise. And they are trying to stop that. The senses as we know them, mainly bring us pleasure. Like music, laughter, the wind blowing through the trees. Sunshine on our faces, the smell of a brand new morning. For Autistic children, the breeze that feels that good to us might feel like knives cutting their skin. And all they do to try and make that stop.

I think I understand to an extent. I have fibromyalgia. Sometimes my hair hurts. And the wind blowing across my skin makes me want to scream. My clothes have to fit me a certain way. Sometimes I change clothes several times a day. And I will find something that is comfortable finally. It might be the same thing I tried yesterday and it didn't work. Loud noises make me insane. Loud noise physically hurts me. And the only difference between  Noah and myself, is that my mind works differently. I know how to channel the appropriate reaction. I can communicate to those around me. I hurt, leave me alone. I can tell them the music is too loud. I can speak for myself. I may not understand why, but I understand what.

Carly tell us that she feels she is on fire. She says that her head fills like exploding and letting everything out.
I am so so happy for her and her family. Hopefully we will be able to learn from her the What. Scientist and Doctors could learn what is going on, and then they can come up with the why. Our hope is one day, that they can develop a way to treat the mind and take away the pain.

Tuesday, September 22, 2009

Twittering...who knew

Who knew Twittering could be so entertaining? When I first got an account way back in April of this year, I just didn't see the big deal. Never really messed with it again...and I would hear of people twittering...and you know..Big Celebrity like people, it still didn't click...Now I figured it out...These people are just regular folks like us and they just feel the need to let everyone know what they are doing...and it is pretty cool to read stuff.
But really, it was when I read that there was a different Director for the movie "Eclipse" and I googled him, then I saw something about him Sending Photos of Taylor Laurent on the set. I thought "Really?" and so I looked and Yes he did....So then I started exploring...

So this morning I saw he had sent a couple of messages and another photo...okay folks go nuts...
Basically in the Foreground, it is a picture of a camera...and way in the blurred background, you could make out that it was "Emmet" and "Rosalie"...but really? Guys, you could barely make them out and only because you knew that these were 2 of the vampires...lol...But everyone was like "Wow" "Awesome" photo...and I am thinking..Yeah Nice Camera...laying on the ground...Reminds me of the ATT commericial of the man on the patio...Tweeting on his phone that he was Sitting on the Patio....WOW....

Oh, and I absolutely love David Cook and his Twitter stuff is awesome as he is very chatty...
I came here because I had something else on my mind, but guess what...Duh..I am having a gray moment..Must because I stayed up till 1AM and then my dog Ruby thought 4:00 Am would be a nice time to get up...I guess this woke Mike up and when I came back to bed a few minutes later, he was yawning and kicking and moving around....JEESH>...stop it already..just go back to sleep...NOT!!!
Well this will definitely have my Fibromyalgia screaming by the time I get home from work...ARGH...

And now that I am ranting a little, We waited for a long time to see a new HOUSE...and last night, Mike was a little too busy to actually sit down and watch it...Maybe tonight...now we are behind on our shows after just one night....I guess cleaning off the DVR was probably a good idea even though I have to go to "On Demand" to see Leverage....

I hope something pulls me out of the "Twilight"...I haven't watched General Hospital in about a month...UHG UHG...

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